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Pariah People
Personal stories of healing from chronic injury and
illness.
Melva
I may have been
Chemically Sensitive since birth, however the first reaction I ever had
was to the childhood immunizations back in the 60's. I would seizure
each time I had one, and was unable to be fully immunized because of
this. Growing up on a farm, it was not uncommon to be exposed to
pesticides from the fields. I can recall making a game out of running
and jumping over rows of potato plants that were often covered in a
yellow powder. My face and ears would become red and hot, and my vision
distorted. I once recall asking why the cat's head looked so much
smaller than it's body.
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Growing up on a farm, it was not
uncommon to be exposed to pesticides from the fields.
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Pesticides also found their way inside our home in large doses. My
father once sprayed the inside wall for termites with a mixture he made.
I recall feeling a strange sensation as I would lay on the couch and
look up at the streaked walls, and often giggled out of control,
although there wasn't anything funny. Months later, the cat lost weight,
and died.
Going to school presented another problem. I would forget where my room
was, and get lost. I once sat through an entire class without realizing
I was surrounded by different classmates. This caused problems with the
teachers who didn't understand what was happening. Riding the bus often
made me sick from the exhaust, and very likely the only thing that kept
me going at the time was detoxing outside on the farm on days chemical
products were not sprayed.
We moved into a new home in the mid 1970's, leaving the country life for
the banks of the Ohio River. Once again my father mixed up a pesticide
combination, and this time sprayed the inside structure of the building
prior to the walls being finished. I became chronically fatigued, and
developed flu like symptoms that would not go away.
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Time and time again I was sent
back to work as the doctor's did not know what was wrong
with me.
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This caused a lot of difficulty while going to college and trying to
work. In addition to the new appliances and furniture out gassing in the
home, many of the buildings at the University of Louisville were new and
out gassing as well. They would make me sick and spacey shortly after
entering them. My hands and feet would turn ice cold, and I'd feel
faint. Although it broke my heart to give up a career in Communications,
I became so ill that I quit college in the early 1980's to take a job in
a building that had a new addition added to it. The position was also
over what was then an unvented woodworking shop where they often painted
and varnished wood that was used in both enhancing the beauty of the
building, as well as in an exhibit gallery that was ever changing. My
health began to decline rapidly. Working security, I was often stationed
alone, and recall having to crawl the length of the building to call for
help, because I became so I'll I could no longer stand.
I would get sicker with each new exhibit, and shortly after working
there I fainted and they could not get a blood pressure reading on me.
Time and time again I was sent back to work as the doctor's did not know
what was wrong with me. And each time I would get sicker and sicker, now
unable to be around scented or cleaning products without experiencing a
severe heavy brain fog, limbs that turned ice cold, dizziness and
fatigue. At the time, they smoked in the break room, and this only added
more to my misery as smoke is filled with chemicals. I had also been a
Ballroom Dancer during times I wasn't sick in bed. However, I began to
dance to a different tune when my reaction to the perfumes became so
strong that it tried to close my throat off and give me such severe
brain fog that I could not concentrate on the steps. I could do nothing
but watch this wonderful sport that had given me so much peace and
happiness, slowly slip away with everything else. I was devastated.
I eventually moved on to other jobs, only to find that I could not
tolerate the inside of buildings long enough to work there. In fact my
own living environment was making me ill. Unknown to me at the time, I
had became what is known as a Universal Reactor, and there was not a
"safe" place to put me where I would not react.
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I could do nothing but watch this
wonderful sport that had given me so much peace and
happiness, slowly slip away with everything else.
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In 1992 I was finally diagnosed with Multiple Chemical Sensitivity. By
this time, I was reacting to everything including lawn spray, synthetic
clothing and dyes, even soaps and personal care products on other
people. I became legally disabled in 1998. In 2007 I gave my car away
because I can no longer drive up the street in my condition. I can
relate to how senior citizens must feel when they give up their
independence. Now severely asthmatic, I am on oxygen. Oddly enough, my
health may be broken, but my spirit certainly is not.
Multiple Chemical Sensitivity totally changed my plans for life. It took
away my career goals, and robbed me of all simple pleasures. Once in a
while I try to get out and do something just to feel like I am part of
the living. I always pick out something that is the least toxic and will
take less time to recover from. However there is always a price to pay.
Often that price is several days in bed, or more, added to the already
existing brain fog and fatigue. I believe that having some sort of
enjoyment in life is important. The earthly love of my life was Ballroom
Dancing, and while I could only stumble through some steps, I hope one
day to see people with MCS, Asthma, and Allergy unite to form a
scent-free social where they can at least uplift each other emotionally
in this Dance we call Life.
See you on the dance floor,
Melva
Melva is a founding
member of the
EI/MCS Support Group of Louisville.
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