2008 Autumn Equinox/Winter Solstice Issue

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Ever Wonder Why You're So Different?~ Kate Goldfield

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Pariah People

 

 

"Ever Wonder Why You're So Different?"

My Nontoxic Wedding and Honeymoon

 

 

 

 

 

 

"Ever Wonder Why You're So Different?"

by Kate Goldfield

 

When I was a freshman in college, someone asked a friend of mine if I was autistic. Having almost no knowledge about what autism was other than a dim memory of a Rain Man- like character rocking in the corner and nonverbal, I was appalled. How could anyone possibly think I was like that?

I discovered something called Asperger's Syndrome, which is high-functioning autism and markedly different in its presentation than what we could call classic autism.

Two years later, I rediscovered the subject of autism after seeing a Lifetime movie about it. I was intrigued by some of the concepts in it and began reading everything I could find about autism, purely out of intellectual interest.

I awakened to the notion that a lot of what I was reading sounded like me. I learned that autism is actually a spectrum disorder, which means that there are people who are affected by it on different levels. I discovered something called Asperger's Syndrome, which is high-functioning autism and markedly different in its presentation than what we could call classic autism.

People with Asperger's Syndrome, or AS, I learned, have trouble reading social cues and understanding nonverbal language. They have trouble knowing what to say in conversations, when to start speaking and when to stop speaking. They fail to notice subtle conversational cues like change in tone of voice or body posture. In fact, they have trouble with social language in general. They are often highly intelligent, especially with special interests that they pursue, but have trouble conversing. Because of this, they have trouble making friends and many will go through all of high school and college without having ever really made a good friend.

Sensory issues are very prevalent in people with AS. They can hear the sound of a person tapping their pencil from across the room. The smell of cigarette smoke or cleaning agents will drive them crazy. Lights are either too bright or too dim and they often have a difficult time finding clothes that they can bear wearing because of the way they feel on their skin. Often, they will have "sensory overloads" and need some time out from an activity to process all that is happening to them.

Sensory issues are very prevalent in people with AS. They can hear the sound of a person tapping their pencil from across the room. The smell of cigarette smoke or cleaning agents will drive them crazy.

For this reason, eye contact can hurt. Social interactions for someone with AS can be like trying to put together a 500-piece puzzle before the time is up. We even speak differently; our conversational manner tends to be quite genuine. We say what we're thinking.

It is this genuineness, though, that endears us to many people. We don't play guessing games with people; we say what we mean. As employees and friends, we are loyal. We have the ability to focus completely on tasks of interest for hours at a time and also to remember huge amounts of facts related to our interests quite easily.

When I was diagnosed with AS last summer, it came as an enormous relief. I finally knew why I had always hovered on the outside of social life, always wanting to join in but somehow never being able to figure out quite how. I could find other people who understood me and were like me.

 I feel that it is only by learning about each other's struggles and truly trying to understand them that we can build a world that is safe for everyone - a world where we can grow and improve because we are taking advantage of everyone's strengths, not just the strengths of a selective few.

Unfortunately, so many people are not as fortunate as I was to gain this understanding about myself. There is comparatively little information available about AS. It was put into the Diagnostic and Statistical Manual of Disorders (the official handbook of what is and what is not a psychological disorder) in 1994. There are so many people out there who wonder why they are different, who are desperate to find the missing piece but have never even heard of AS.

I explain all of this just to give the average person an idea of what it is like to live on the autistic spectrum. I feel that it is only by learning about each other's struggles and truly trying to understand them that we can build a world that is safe for everyone - a world where we can grow and improve because we are taking advantage of everyone's strengths, not just the strengths of a selective few. That's the kind of world I want to live in. It's the kind of world we all want to live in.

 

Kate's article was previously Published in the Baltimore Sun newspaper, November 25, 2005"

Kate Goldfield is a writer based in various points in the country who enjoys autism advocacy, radio, meeting new people and raising awareness of neurodiversity issues. You can contact her at KGoldfie@gmail.com

 

 

 

 

 

 

 

My Nontoxic Wedding and Honeymoon

By Jennifer D’Alvarez

 

When my husband proposed to me, I was obviously excited but then became quickly overwhelmed. I had been suffering from severe chemical sensitivities for just over a year and the thought of planning a ”safe” wedding seemed like an impossible task however I was up for the challenge. In the end, I managed to have not only a nontoxic wedding but a nontoxic honeymoon as well. I hope that by sharing the details of my wedding and honeymoon planning, that other chemically injured individuals will realize that they too can have an elegant and wonderful wedding without getting sick. 

 

Location:

I think that more than anything, the location was key. We held the wedding on the lawn of our friend’s house because they don’t use any pesticides or herbicides. By controlling the environment we could set the tone for the rest of the wedding.

 

Vendors:

I asked all vendors to refrain from wearing fragrance. I asked the caterer to use organic ingredients when possible. I didn’t feel the need to purchase organic flowers although that was an option. As for the rental company, I requested that they wash and dry the linens without the use of fabric softener however that wasn’t possible. This actually wasn’t an issue since the tablecloths aired out for hours in the sun prior to the wedding.

 

Decorations:

I opted out of putting votives on each table as I didn’t want to get sick from the smoke. Instead, I strung mini white lights throughout the yard (around the trees and in the bushes) and it looked beautiful.

 

Wedding Dress:

I searched online for bridal shops, read reviews and avoided stores that had scents. I explained my health issues to the owners so they would expedite the “trying on” process. Once I purchased the dress, I requested that it be cleaned by a non-toxic dry cleaner.

 

Guests:

An insert was included in each invitation asking guests to refrain from wearing fragrance of any type. We followed-up with phone calls and everyone obliged.

 

Bridal Showers:

I had three bridal showers, all on restaurant patios. My mother and I talked to the managers of each restaurant extensively before each shower, explained my health issues and asked them to refrain from spraying pesticides at least 2 weeks prior. All obliged and even rearranged their spray schedules to accommodate me. Invitations asked guests to refrain from wearing perfume and calls were made to remind them.

 

Bachelorette Weekend:

I opted out of a typical bachelorette party for obvious health reasons. Instead, my girlfriends rented a cabin on Big Bear Lake for the weekend. Both my maid of honor and I called the management company a couple of times each, explained my issues, and asked that the house be cleaned with only vinegar and water prior to my arrival. I sent an email to my friends describing the types of things that make me sick (and why) and offered to bring personal care and cleaning products for everyone to use which they did. 

 

Rehearsal Dinner and day after wedding breakfast:

Both were held in private rooms of restaurants which had access to fresh air (via doors that opened to the outside). We called ahead of time and asked them not to spray pesticides at least 2 weeks prior to our dinner/breakfast and to clean the rooms with vinegar and water which they did.

 

Honeymoon:

In selecting our honeymoon destination we took into account the amount of air travel and local environment. Europe was out since it was at least an 11 hour flight. We also considered the fact that there would probably be too many smokers. Most tropical countries were out as well since our research told us that the weather conditions meant that there would be tons of mosquitoes and most people would be using bug spray. We decided instead to go to New York City and Aruba and both turned out to be wonderful.

 

"Marriage is not a ritual or an end. It is a long, intricate, intimate dance together and nothing matters more than your own sense of balance and your choice of partner."

 Amy Bloom

I was initially concerned about going to New York City because of pollution but once we got there I quickly realized that the air quality in LA is far worse. We stayed in a hotel on a residential street in the Upper Westside. I contacted the hotel ahead of time and requested that our room be cleaned with vinegar and water. The subways were relatively empty during the day and were surprisingly alright during the evening rush hour as they were well ventilated and people weren’t wearing much perfume (although we didn’t take it during a weekday morning which may have made a difference). We ate most meals outside to avoid pesticides and other exposures and did other normal tourist activities. All in all, I was fine in NYC.

After spending 2 whirlwind days in NYC, we were off to Aruba. We stayed in a small, eco-friendly, non-smoking hotel quite a few miles away from the high rises (and therefore all the people). Prior to our trip, the hotel staff and I exchanged several emails discussing my health issues and they assured me that my needs would be met. They cleaned our room prior to our arrival with vinegar and water and continued to do so for the duration of the trip. They washed all of our linens with water and vinegar and I was actually able to sleep on their sheets which I haven’t been able to do since getting sick. It was amazing. I felt perfectly fine in the hotel room and didn’t need to open any doors for fresh air.

 

Marriage doesn’t give one any rights in another person except such rights that a person gives -
 nor any freedom except the freedom which that person gives.

Kahlil Gibran

We did many normal tourist and honeymoon activities while there including a massage on the beach for which we had the massage therapists use my unscented lotion and refrain from wearing fragrance. We took several taxis during our trip and always did the “sniff” test before getting in. We had many adventures and had a perfect honeymoon. The air in Aruba was incredibly clean and I felt like a totally healthy person. It was truly wonderful.

You’ve probably noticed a theme throughout my entire story. Communication is key. We constantly called, called again, and verified arrangements. From the vinegar and water for cleaning to ensuring people refrained from wearing fragrance. I can’t stress enough the importance of following up to make sure the conditions are as perfect as possible. Communication more than anything else made my experiences amazing and I wouldn’t change a thing.

A perfect honeymoon was a great follow-up to a perfect wedding. I hope my story has been helpful and provides some ideas as to how you too can have a safe, nontoxic wedding and honeymoon. 

Jen was born and raised in Southern California and currently resides in the San Gabriel Valley, which is an area just north of Los Angeles.  She is the director of development for a non-profit organization that provides services and programs to high risk youth and their families.

 

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